IF YOU MISSED THE TODAY SHOW...

If you missed the TODAY SHOW on Jan. 28th, here is the link to the clip of liam's lighthouse foundation on the Today Show. When you click on the link below, it should pull the video up ready to go. You need to be patient as it did take a little bit for it to get going on its own, but you don't have to click on anything else. It is the first 40 min of the show and if you fast forward to 19 minutes in, you will see Rochelle holding Liam's photo against the window outside behind Al Roker. Then if you fast forward to 34 minutes in, April is interviewed briefly by Al Roker. At least we got a little air time. The girls did a great job. So for those of you that missed it, you can click on:


http://today.msnbc.msn.com/id/26184891/vp/35123518#35122213


Thanks again for all of your continued support!

PLEASE VOTE FOR US!

Check out this inspirational video on the Extraordinary Measures Inspirational Quilt.


Please vote for it while you are there!

As a parent of a baby angel who was diagnosed with HLH, we need to continue to keep up the fight our children have fought and are still fighting. I made this video in honor of my brave son, Liam, and all the brave histio warriors and angels out there. If we are fortunate enough to win this contest, the money will be put directly to the research of Histiocytosis. We need to make a difference and this money would be a great start. I hope we can count on your votes and continued support. You can vote once a day until January 29, 2010 ,11:59 p.m. Baby Angel Liam and the all the Histio warriors and angels thank you!

Title: Children dying undiagnosed from rare disease
Link: http://extraordinarymeasuresthemovie.com/?videoId=298

There are also 2 other Histio videos:
http://extraordinarymeasuresthemovie.com/?videoid=272
http://extraordinarymeasuresthemovie.com/?videoid=291
The more awareness, the better!

Respectfully,

Michelle Schulze (Baby Angel Liam's mom)

LIAM'S "SOLDIERS" NYC BOUND...

We have a team of Liam's "soldiers" going to NYC next week, (Wed. the 27th) to help promote awareness for Histiocytosis. We thought since the movie, Extraordinary Measures was being released in theaters that we would try and promote this orphan disease. Also, since there is an information window display regarding Histiocytosis in Rockefeller Center, we thought this would be good timing. Since there is so much publicity about the movie and it being based on a true story, it would be a great time to get the word out there about Histiocytosis. We have been in touch with the HAA and told them our idea and they wanted to help in any way, so they sent Rochelle information cards, lollipops with wrappers that say "HISTIO SUCKS" on them to be passed out, and blue balloons. Thank you HAA for your help. Rochelle has made royal blue fleece scarves that she will pass out to the TODAY SHOW crowd outside so that we can get the crowd in blue and they can ask us "What is this all about"? How wonderful would it be to say Histiocytosis on national TV? Anyone that would like to join these soldiers, you can contact Rochelle at dirtdetective@comcast.net.


"One person with passion is better than 40 who are merely interested."

Our Baby Angel Liam Christopher